Hello and welcome to the Fairfax Cryobank Family Forum!
The forum has a new look and the Fairfax Team is so excited to create the best experience for our users.
To Note:
Private Donor Groups and Private Sibling Connection Groups are now located under the category "Groups". Search the donor number in the search box and you should find exactly what you're looking for!
Questions about your forum access? Email forum@fairfaxcryobank.com
Follow these steps to join a private donor group:
1) Press "Join" at the right of the group
2) Once prompted to confirm your request please list this information so we can verify your information:
Name (under which the vial was purchased)
Email
Clinic Name
Donor number
Child Date of Birth
*If you are looking to start a private group for a PRS donor please email forum@fairfaxcryobank.com with the above information and that you are looking for a PRS group*
If you have any questions about the verification process please email forum@fairfaxcryobank.com
The forum has a new look and the Fairfax Team is so excited to create the best experience for our users.
To Note:
Private Donor Groups and Private Sibling Connection Groups are now located under the category "Groups". Search the donor number in the search box and you should find exactly what you're looking for!
Questions about your forum access? Email forum@fairfaxcryobank.com
Follow these steps to join a private donor group:
1) Press "Join" at the right of the group
2) Once prompted to confirm your request please list this information so we can verify your information:
Name (under which the vial was purchased)
Clinic Name
Donor number
Child Date of Birth
*If you are looking to start a private group for a PRS donor please email forum@fairfaxcryobank.com with the above information and that you are looking for a PRS group*
If you have any questions about the verification process please email forum@fairfaxcryobank.com
Medical Update- CLI Donor 1402
CLI Moderator
Senior Member
Medical Updates provided by CLI offer the added advantage that they are verified. We can confirm client information, review donor records and provide you accurate information right from the source. Please contact us if there is a medical update you would need to share. Donors can always update their medical history with us and we will share that information with you when it becomes available.
Donor 1402 has an offspring with a congenital heart defect. Another child was diagnosed with an autism spectrum disorder (ASD)
There has been a recent report of a ventricular septal defect in a child born from the use of donor 1402. This child had no other identified medical issues. A ventricular septal defect is a congenital heart defect present at birth. Congenital heart defects (CHDs) are among the most common birth defects in humans, occurring in 0.5 to 1% of all live births. CHDs usually do not occur solely due to a genetic influence or mutation. CHDs are thought to occur due to multiple factors, which include both environmental factors and genetic predispositions. For full siblings to this child with the heart defect, the risk they would have a CHD is approximately 2%. For your children who would be half siblings to this child with the heart defect, the risk is about half that risk or 1%.
In a future pregnancies with this donor, we recommend you consider a consultation with a genetic or fetal specialist to discuss the risk for a CHD. Level II ultrasound and fetal echocardiogram in the second trimester are recommended. Repeated ultrasound evaluations or other diagnostic tests may also be recommended, but can only be determined in the context of a medical consultation.
Autism affects about 1 in 150 children in the United States. More children than ever are being diagnosed with autism. The rates of diagnosis of ASD are about 10 times higher than in the 1980s, though much or all of this increase may be due to improved awareness and changes in how autism is diagnosed. Genetically, it is clear that the ASD represent a number of different disorders which have some overlap in features. Genetic inheritance has been strongly suggested by studies of twins and families with multiple affected children. Overall, it is believed that there are many genes involved in ASD along with possible environmental or immunologic triggers. A number of studies have been performed to estimate the recurrence risk in families who already have a child with ASD. These have shown a risk for the same family of between 2 and 8% in future children. For half-siblings (as would occur if someone were to use donor #1402) the risk can only be estimated, and may be 2-3%. At the current time, there are no prenatal tests to detect children who will be affected with ASD.
If you have stored semen samples on site with your doctor’s facility or at CLI you are entitled to a full refund for the cost paid per dose. Only unused semen specimens will qualify for a refund. Any incurred shipping or storage costs will not be refunded. If the specimens are stored at your doctor’s office and you do not want to keep the specimens for future use and desire a refund, you must authorize destruction at your doctor’s facility and that facility must send us a letter indicating that they have complied with that request. Only after receiving that letter from the offsite storage facility with your name, donor #, vial ID numbers including the total number of units destroyed will the refund be generated.
You may keep your specimens and use them in the future if you wish. You may also order more semen units from CLI if they are available, in order to have a full sibling. Prior to using any units, or transferring any embryos created from donor #, we will require that you sign an informed consent that confirms you understand the circumstances with this donor’s medical update. Any units of donor # sent from CLI will require that the informed consent be signed, notarized and returned prior to shipment. A copy of that informed consent is available by contacting CLI. Once signed you would no longer qualify for a full refund on unused specimens. In that case, you could request a 50% refund on only those units stored at CLI.
CLI has a full time certified genetic counselor, Suzanne Seitz, MS, available to you to answer your questions. In addition our staff is available to help process refunds and exchanges as necessary. Please call us at 1-800-466-2796 for more information.
Donor 1402 has an offspring with a congenital heart defect. Another child was diagnosed with an autism spectrum disorder (ASD)
There has been a recent report of a ventricular septal defect in a child born from the use of donor 1402. This child had no other identified medical issues. A ventricular septal defect is a congenital heart defect present at birth. Congenital heart defects (CHDs) are among the most common birth defects in humans, occurring in 0.5 to 1% of all live births. CHDs usually do not occur solely due to a genetic influence or mutation. CHDs are thought to occur due to multiple factors, which include both environmental factors and genetic predispositions. For full siblings to this child with the heart defect, the risk they would have a CHD is approximately 2%. For your children who would be half siblings to this child with the heart defect, the risk is about half that risk or 1%.
In a future pregnancies with this donor, we recommend you consider a consultation with a genetic or fetal specialist to discuss the risk for a CHD. Level II ultrasound and fetal echocardiogram in the second trimester are recommended. Repeated ultrasound evaluations or other diagnostic tests may also be recommended, but can only be determined in the context of a medical consultation.
Autism affects about 1 in 150 children in the United States. More children than ever are being diagnosed with autism. The rates of diagnosis of ASD are about 10 times higher than in the 1980s, though much or all of this increase may be due to improved awareness and changes in how autism is diagnosed. Genetically, it is clear that the ASD represent a number of different disorders which have some overlap in features. Genetic inheritance has been strongly suggested by studies of twins and families with multiple affected children. Overall, it is believed that there are many genes involved in ASD along with possible environmental or immunologic triggers. A number of studies have been performed to estimate the recurrence risk in families who already have a child with ASD. These have shown a risk for the same family of between 2 and 8% in future children. For half-siblings (as would occur if someone were to use donor #1402) the risk can only be estimated, and may be 2-3%. At the current time, there are no prenatal tests to detect children who will be affected with ASD.
If you have stored semen samples on site with your doctor’s facility or at CLI you are entitled to a full refund for the cost paid per dose. Only unused semen specimens will qualify for a refund. Any incurred shipping or storage costs will not be refunded. If the specimens are stored at your doctor’s office and you do not want to keep the specimens for future use and desire a refund, you must authorize destruction at your doctor’s facility and that facility must send us a letter indicating that they have complied with that request. Only after receiving that letter from the offsite storage facility with your name, donor #, vial ID numbers including the total number of units destroyed will the refund be generated.
You may keep your specimens and use them in the future if you wish. You may also order more semen units from CLI if they are available, in order to have a full sibling. Prior to using any units, or transferring any embryos created from donor #, we will require that you sign an informed consent that confirms you understand the circumstances with this donor’s medical update. Any units of donor # sent from CLI will require that the informed consent be signed, notarized and returned prior to shipment. A copy of that informed consent is available by contacting CLI. Once signed you would no longer qualify for a full refund on unused specimens. In that case, you could request a 50% refund on only those units stored at CLI.
CLI has a full time certified genetic counselor, Suzanne Seitz, MS, available to you to answer your questions. In addition our staff is available to help process refunds and exchanges as necessary. Please call us at 1-800-466-2796 for more information.