Hello and welcome to the Fairfax Cryobank Family Forum!
The forum has a new look and the Fairfax Team is so excited to create the best experience for our users.
To Note:
Private Donor Groups and Private Sibling Connection Groups are now located under the category "Groups". Search the donor number in the search box and you should find exactly what you're looking for!
Questions about your forum access? Email forum@fairfaxcryobank.com
Follow these steps to join a private donor group:
1) Press "Join" at the right of the group
2) Once prompted to confirm your request please list this information so we can verify your information:
Name (under which the vial was purchased)
Email
Clinic Name
Donor number
Child Date of Birth
*If you are looking to start a private group for a PRS donor please email forum@fairfaxcryobank.com with the above information and that you are looking for a PRS group*
If you have any questions about the verification process please email forum@fairfaxcryobank.com
The forum has a new look and the Fairfax Team is so excited to create the best experience for our users.
To Note:
Private Donor Groups and Private Sibling Connection Groups are now located under the category "Groups". Search the donor number in the search box and you should find exactly what you're looking for!
Questions about your forum access? Email forum@fairfaxcryobank.com
Follow these steps to join a private donor group:
1) Press "Join" at the right of the group
2) Once prompted to confirm your request please list this information so we can verify your information:
Name (under which the vial was purchased)
Clinic Name
Donor number
Child Date of Birth
*If you are looking to start a private group for a PRS donor please email forum@fairfaxcryobank.com with the above information and that you are looking for a PRS group*
If you have any questions about the verification process please email forum@fairfaxcryobank.com
Medical Update- CLI Donor 2410
CLI Moderator
Senior Member
A case of a child with a medical issue has been reported and we are currently investigating this further to determine if it is donor related.
A child has been reported with multiple myeloma at age 18 months. (Donor 2410 is under investigation at the time of this post 3/21/11)
CLI is committed to providing updated medical information about our donors. We will post updates to this forum as soon as we have the information.
CLI has a full time certified genetic counselor, Suzanne Seitz, MS, available to you to answer your questions. Please call us at 1-800-338-8407 for more information.
A child has been reported with multiple myeloma at age 18 months. (Donor 2410 is under investigation at the time of this post 3/21/11)
CLI is committed to providing updated medical information about our donors. We will post updates to this forum as soon as we have the information.
CLI has a full time certified genetic counselor, Suzanne Seitz, MS, available to you to answer your questions. Please call us at 1-800-338-8407 for more information.
Comments
Donor 2410 has an offspring diagnosed with alvelar rhabdomyosarcoma
This type of tumor is typically of a sporadic, nonhereditary type. We believe the risk to other offspring is extremely low and have decided to release this donor from investigation after careful review with our medical geneticist. He is now available to others who wish to use him.
CLI has a full time certified genetic counselor, Suzanne Seitz, MS, available to you to answer your questions. Please call us at 1-800-466-2796.