Hello and welcome to the Fairfax Cryobank Family Forum!
The forum has a new look and the Fairfax Team is so excited to create the best experience for our users.
To Note:
Private Donor Groups and Private Sibling Connection Groups are now located under the category "Groups". Search the donor number in the search box and you should find exactly what you're looking for!
Questions about your forum access? Email forum@fairfaxcryobank.com
Follow these steps to join a private donor group:
1) Press "Join" at the right of the group
2) Once prompted to confirm your request please list this information so we can verify your information:
Name (under which the vial was purchased)
Email
Clinic Name
Donor number
Child Date of Birth
*If you are looking to start a private group for a PRS donor please email forum@fairfaxcryobank.com with the above information and that you are looking for a PRS group*
If you have any questions about the verification process please email forum@fairfaxcryobank.com
The forum has a new look and the Fairfax Team is so excited to create the best experience for our users.
To Note:
Private Donor Groups and Private Sibling Connection Groups are now located under the category "Groups". Search the donor number in the search box and you should find exactly what you're looking for!
Questions about your forum access? Email forum@fairfaxcryobank.com
Follow these steps to join a private donor group:
1) Press "Join" at the right of the group
2) Once prompted to confirm your request please list this information so we can verify your information:
Name (under which the vial was purchased)
Clinic Name
Donor number
Child Date of Birth
*If you are looking to start a private group for a PRS donor please email forum@fairfaxcryobank.com with the above information and that you are looking for a PRS group*
If you have any questions about the verification process please email forum@fairfaxcryobank.com
Medical Update- CLI Donor 1047
CLI Moderator
Senior Member
Medical Updates provided by CLI offer the added advantage that they are verified. We can confirm client information, review donor records and provide you accurate information right from the source. Please contact us if there is a medical update you would need to share. Donors can always update their medical history with us and we will share that information with you when it becomes available.
Donor has offspring with medical conditions reported.
There are reports of different medical or developmental problems in children born from pregnancies in which semen from donor #1047 was used. These include; a) two siblings, (male and female) diagnosed with pervasive developmental disorder (PDD); b) a child born with congenital heart disease and; c) a child born with multiple birth defects including congenital heart disease, cleft palate and anal abnormalities (chromosome analysis normal). PDD encompasses a spectrum of developmental abnormalities and is believe to be influenced by genes from both parents. Likewise, congenital heart disease is also a “multifactorial” trait with a genetic influence from both parents. Finally, we understand that it is likely that the child with multiple birth defects may have a genetic syndrome that accounts for the observed association of birth defects. The recurrence risk of this complex of abnormalities cannot be predicted without an accurate diagnosis but most likely is above that of the general population.
On review of these outcomes, even though the individual cases are unique and contain some genetic input from each recipient mother, CLI believes the risk of an adverse pregnancy outcome is greater than that of the general population Although the exact risk cannot be calculated, future pregnancies do have a risk of physical or developmental problems in children born likely significantly increased over the 3-4% population incidence of birth defects. Donor 1047 semen will no longer be offered for general sale but will, however, be offered to couples if available that have a previous child using donor # 1047 and wish to have a biologically related sibling.
If you have stored semen samples on site with your doctor’s facility or at CLI you are entitled to a full refund for the cost paid per dose. Only unused semen specimens will qualify for a refund. Any incurred shipping or storage costs will not be refunded. If the specimens are stored at your doctor’s office and you do not want to keep the specimens for future use and desire a refund, you must authorize destruction at your doctor’s facility and that facility must send us a letter indicating that they have complied with that request. Only after receiving that letter from the offsite storage facility with your name, donor #1047, vial ID numbers including the total number of units destroyed will the refund be generated.
You may keep your specimens and use them in the future if you wish. You may also order more semen units from CLI if they are available, in order to have a full sibling. Prior to using any units, or transferring any embryos created from donor #1047, we will require that you sign an informed consent that confirms you understand the circumstances with this donor’s medical update. Any units of donor # sent from CLI will require that the informed consent be signed, notarized and returned prior to shipment. A copy of that informed consent is available by contacting CLI. Once signed you would no longer qualify for a full refund on unused specimens. In that case, you could request a 50% refund on only those units stored at CLI.
CLI has a full time certified genetic counselor, Suzanne Seitz, MS, available to you to answer your questions. In addition our staff is available to help process refunds and exchanges as necessary. Please call us at 1-800-466-2796 for more information.
Donor has offspring with medical conditions reported.
There are reports of different medical or developmental problems in children born from pregnancies in which semen from donor #1047 was used. These include; a) two siblings, (male and female) diagnosed with pervasive developmental disorder (PDD); b) a child born with congenital heart disease and; c) a child born with multiple birth defects including congenital heart disease, cleft palate and anal abnormalities (chromosome analysis normal). PDD encompasses a spectrum of developmental abnormalities and is believe to be influenced by genes from both parents. Likewise, congenital heart disease is also a “multifactorial” trait with a genetic influence from both parents. Finally, we understand that it is likely that the child with multiple birth defects may have a genetic syndrome that accounts for the observed association of birth defects. The recurrence risk of this complex of abnormalities cannot be predicted without an accurate diagnosis but most likely is above that of the general population.
On review of these outcomes, even though the individual cases are unique and contain some genetic input from each recipient mother, CLI believes the risk of an adverse pregnancy outcome is greater than that of the general population Although the exact risk cannot be calculated, future pregnancies do have a risk of physical or developmental problems in children born likely significantly increased over the 3-4% population incidence of birth defects. Donor 1047 semen will no longer be offered for general sale but will, however, be offered to couples if available that have a previous child using donor # 1047 and wish to have a biologically related sibling.
If you have stored semen samples on site with your doctor’s facility or at CLI you are entitled to a full refund for the cost paid per dose. Only unused semen specimens will qualify for a refund. Any incurred shipping or storage costs will not be refunded. If the specimens are stored at your doctor’s office and you do not want to keep the specimens for future use and desire a refund, you must authorize destruction at your doctor’s facility and that facility must send us a letter indicating that they have complied with that request. Only after receiving that letter from the offsite storage facility with your name, donor #1047, vial ID numbers including the total number of units destroyed will the refund be generated.
You may keep your specimens and use them in the future if you wish. You may also order more semen units from CLI if they are available, in order to have a full sibling. Prior to using any units, or transferring any embryos created from donor #1047, we will require that you sign an informed consent that confirms you understand the circumstances with this donor’s medical update. Any units of donor # sent from CLI will require that the informed consent be signed, notarized and returned prior to shipment. A copy of that informed consent is available by contacting CLI. Once signed you would no longer qualify for a full refund on unused specimens. In that case, you could request a 50% refund on only those units stored at CLI.
CLI has a full time certified genetic counselor, Suzanne Seitz, MS, available to you to answer your questions. In addition our staff is available to help process refunds and exchanges as necessary. Please call us at 1-800-466-2796 for more information.
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