Medical Update- CLI Donor 2410
CLI Moderator
Senior Member
Medical Updates provided by CLI offer the added advantage that they are verified. We can confirm client information, review donor records and provide you accurate information right from the source. Please contact us if there is a medical update you would need to share. Donors can always update their medical history with us and we will share that information with you when it becomes available.
Donor 2410 has an offspring with unilateral sensori-neural hearing loss.
Please see the prior medical update about the donor being a carrier of PKU.
What are the risks for my child?
Hearing loss can be sporadic (1/3 of cases) or inherited (2/3 of cases) and at this point it is impossible for us to tell which form it is. If this is a case of sporadic hearing loss, other offspring from this donor would not be at increased risk. If it is the inherited form, it can be passed in a dominant form (parent to child with both affected) or recessive form (where both biological parents are considered carriers but themselves hearing). Dominant inheritance is ruled out as both biological parents are hearing and have no other history of hearing loss in their families. Therefore it is theoretically possible that the donor could be a carrier of an undiagnosed recessive form of hearing loss. In order for a child to be born with this recessive hearing loss condition, both biological parents would have to be carriers. The chance that another mother would also carry the gene is likely small, about 1/100 or 1%. The risk of an affected child with this donor #2818 would be about 1/400 or less than 1%. Since no genetic abnormality was found, we have no testing that can be offered to look for this issue.
If you have stored semen samples on site with your doctor’s facility or at CLI you are entitled to a full refund for the cost paid per dose. Only unused semen specimens will qualify for a refund. Any incurred shipping or storage costs will not be refunded. If the specimens are stored at your doctor’s office and you do not want to keep the specimens for future use and desire a refund, you must authorize destruction at your doctor’s facility and that facility must send us a letter indicating that they have complied with that request. Only after receiving that letter from the offsite storage facility with your name, donor #, vial ID numbers including the total number of units destroyed will the refund be generated.
You may keep your specimens and use them in the future if you wish. You may also order more semen units from CLI if they are available, in order to have a full sibling. Prior to using any units, or transferring any embryos created from donor #, we will require that you sign an informed consent that confirms you understand the circumstances with this donor’s medical update. Any units of donor # sent from CLI will require that the informed consent be signed, notarized and returned prior to shipment. A copy of that informed consent is available by contacting CLI. Once signed you would no longer qualify for a full refund on unused specimens. In that case, you could request a 50% refund on only those units stored at CLI.
CLI has a full time certified genetic counselor, Suzanne Seitz, MS, available to you to answer your questions. In addition our staff is available to help process refunds and exchanges as necessary. Please call us at 1-800-466-2796 for more information.
Donor 2410 has an offspring with unilateral sensori-neural hearing loss.
Please see the prior medical update about the donor being a carrier of PKU.
What are the risks for my child?
Hearing loss can be sporadic (1/3 of cases) or inherited (2/3 of cases) and at this point it is impossible for us to tell which form it is. If this is a case of sporadic hearing loss, other offspring from this donor would not be at increased risk. If it is the inherited form, it can be passed in a dominant form (parent to child with both affected) or recessive form (where both biological parents are considered carriers but themselves hearing). Dominant inheritance is ruled out as both biological parents are hearing and have no other history of hearing loss in their families. Therefore it is theoretically possible that the donor could be a carrier of an undiagnosed recessive form of hearing loss. In order for a child to be born with this recessive hearing loss condition, both biological parents would have to be carriers. The chance that another mother would also carry the gene is likely small, about 1/100 or 1%. The risk of an affected child with this donor #2818 would be about 1/400 or less than 1%. Since no genetic abnormality was found, we have no testing that can be offered to look for this issue.
If you have stored semen samples on site with your doctor’s facility or at CLI you are entitled to a full refund for the cost paid per dose. Only unused semen specimens will qualify for a refund. Any incurred shipping or storage costs will not be refunded. If the specimens are stored at your doctor’s office and you do not want to keep the specimens for future use and desire a refund, you must authorize destruction at your doctor’s facility and that facility must send us a letter indicating that they have complied with that request. Only after receiving that letter from the offsite storage facility with your name, donor #, vial ID numbers including the total number of units destroyed will the refund be generated.
You may keep your specimens and use them in the future if you wish. You may also order more semen units from CLI if they are available, in order to have a full sibling. Prior to using any units, or transferring any embryos created from donor #, we will require that you sign an informed consent that confirms you understand the circumstances with this donor’s medical update. Any units of donor # sent from CLI will require that the informed consent be signed, notarized and returned prior to shipment. A copy of that informed consent is available by contacting CLI. Once signed you would no longer qualify for a full refund on unused specimens. In that case, you could request a 50% refund on only those units stored at CLI.
CLI has a full time certified genetic counselor, Suzanne Seitz, MS, available to you to answer your questions. In addition our staff is available to help process refunds and exchanges as necessary. Please call us at 1-800-466-2796 for more information.