Hello and welcome to the Fairfax Cryobank Family Forum!
The forum has a new look and the Fairfax Team is so excited to create the best experience for our users.
To Note:
Private Donor Groups and Private Sibling Connection Groups are now located under the category "Groups". Search the donor number in the search box and you should find exactly what you're looking for!
Questions about your forum access? Email forum@fairfaxcryobank.com
Follow these steps to join a private donor group:
1) Press "Join" at the right of the group
2) Once prompted to confirm your request please list this information so we can verify your information:
Name (under which the vial was purchased)
Email
Clinic Name
Donor number
Child Date of Birth
*If you are looking to start a private group for a PRS donor please email forum@fairfaxcryobank.com with the above information and that you are looking for a PRS group*
If you have any questions about the verification process please email forum@fairfaxcryobank.com
The forum has a new look and the Fairfax Team is so excited to create the best experience for our users.
To Note:
Private Donor Groups and Private Sibling Connection Groups are now located under the category "Groups". Search the donor number in the search box and you should find exactly what you're looking for!
Questions about your forum access? Email forum@fairfaxcryobank.com
Follow these steps to join a private donor group:
1) Press "Join" at the right of the group
2) Once prompted to confirm your request please list this information so we can verify your information:
Name (under which the vial was purchased)
Clinic Name
Donor number
Child Date of Birth
*If you are looking to start a private group for a PRS donor please email forum@fairfaxcryobank.com with the above information and that you are looking for a PRS group*
If you have any questions about the verification process please email forum@fairfaxcryobank.com
Comments
*21-hydroxylase-deficient Congenital Adrenal Hperplasia
*Alpha Thalassemia
*Bloom Syndrome
*Canavan Disease
*Cystic Fibrosis
*Familial Dysautonomia
*Fanconi Anemia Type C
*Fragile X Syndrome
*Gaucher Disease
*Hb Beta Chain-related Hemoglobinopathy (Including Beta Thalassemia and Sickle Cell Disease)
*Hexosaminidase A Deficiency (Including Tay-Sachs Disease)
*Mucolipidosis IV
*Niemann-Pick Disease
*Smith-Lemli-Opitz Syndrome
*Spinal Muscular Atrophy
As you can probably guess I opted to test too. I recommend getting it done if you can. It nice to know you have some control over what you pass on to your child. It's been the most satisfying part of this entire process. I was also lucky because my insurance carrier covered most of it and they didn't carry a whole lot.
I am doing the single mother thing with this donor. I did not do the genetic test. I did the NIPT for chromosomal disorders and had a level II ultrasound. But did see a counselor. She told me I could do one but all it is is information for me to know and nothing can be medically done about it. So I chose not to do one on me. Nor will I get an amnio.
thanks so much to all for sharing their thoughts and experiences RE the genetic test.
I really cannot wait to start this journey and join the 4991 family! I am so glad there are other single mums with this donor.
Good luck to everyone and keep us posted, wish you and your babies all the very best!